Can't Sleep

I am hardly ever up this late anymore- i just can't sleep tonight.  I hate it when I can't sleep. My husband is all nice and snug in bed with the blankies and snoring away, and here I am at 1am on my blog- it is all good though.

It is the way it is

Having NF is scary becuase you never know when a tumor will come and where it will be.  For me, I panic everytime I get an "ache" that lasts for a while- I always assume that it is a tumor, and I am afarid to call the doctor, so I just hope that the "ache" will go away. 

Wilson Phillips - Hold On

One of my kiddies

So on Friday I was at work and I always wear my necklace that my husband gave me- it has three little diamonds in it- i think it is the journey necklace.  Anyway one my two year olds said, "Miss Jacki those diamonds are so pretty", he then proceeded to put the necklace down my shirt and he pulled it a little, and some of my "bumpies" were shown. When he saw those he said, "WOW Miss Jacki you have TONS of diamonds". It was so cute. 

October 23, 2010

I think I am the first one to post anything on my blog- LOL.  This is my first time doing a blog and I hope that I am doing it the right way.  There are so many people who are living with NF, both 1 and 2.  It is becoming more aware and not as uncommon.  NFis more heard about these days.  Some people are suffering more than others are and people I think deal with it differently than others.  I feel that God made us this way for a reason.  I know we might think that it is not fair that we are dealing with this, but I always think that it could be worse than what it is. Everyday is a blessing!!