Saturday, February 5, 2011

I realized

Call me crazy, but I have kind of realized something.  I have tons of friends on faceboook who have NF and a majority of those friends who have had tumors or have tumors are located on the left side, whether it is the left eye, left side of the brain, and so on.  And also I might jumping to conclusions here, but most people's right side is the dominate, like writing and what not.  So if the right side is the dominate, and the left is not, but tumors happen on the left side that is not dominate....?  Am I losing anyone or do you know what I am talking about.

Tuesday, February 1, 2011

Bummer

Back in October 2010 I went to see my NF doctor.  I was told that there was this study in progress with a laser treatment to remove small cutaneous tumors that are growing.  They were just doing the ones on the face to see how it panned out and then go from there.  I was told to call in three months to find out if it was working and if so, I could check it out.  So I called tonight and spoke with the Clinical Research Coordinator.  She said that the one person who is doing this has shown no results.  They have tried several lasers and what not, and some lasers are more powerful than others on the ones that they have been using and nothing is shown to be removing them.  
I believe that this is still possible.  There is a reason why it is not happening now.  Maybe down the road there will be a cream found and tested to remove the tumors, if not remove them, then shrink them.  I do believe that there is hope and I am just staying positive.  There are a bunch of people working and researching a cure for NF, in time I think that something has to give.